Yes, we are home. AGAIN. and I plan on keeping it that way! Hank is doing well and is continuing to rest. He is having a little trouble with his right leg/foot and walking isn't easy, we have no idea what that is about, but we will figure it out and get him moving again.Susan and I were able to visit and pray with Hank and Cris last week after Susan’s oncology visit, and were greatly encouraged to see how well he’s doing and how beautifully they trust God and reflect his peace. Strangely, it’s almost easier to go through an ordeal like GBM yourself than see others suffer with it. That was true for me concerning Hank and Cris until I realized we share the same confidence and hope in God. Ultimately, I know Susan and I are okay, that’s why we have peace – now I know Hank and Cris are okay, too.
I know I've said this a million times, but I just want to THANK everyone for your continued support, love, prayers, visits and yummy food. We feel so Blessed.
Hank will start the dendretic cell vaccine (clinical trial) in two weeks, he will get an injection every other week for a total of 3 injections. He will also start an I.V. medication-Avastin, in 4 weeks. I’m not sure how long they will give that one. He will continue to get MRI's every 6 weeks to keep an eye on things. That's the plan for now. I will keep you posted. XOXO - Cris
I love Hank’s heart for the Lord and how he so freely voices his desire that people know Jesus. He shows neither pretense nor embarrassment in sharing his faith. He’s just a guy for whom the important things in life have been brought into focus while other things have been stripped away. He knows whose he is and where he’s going. As I pray for his healing, I’m also praying for the desires of his heart and thank you for doing the same.
Meanwhile, we’re encouraged once again with Susan’s latest MRI that shows her tumor is stable. I’d been concerned that more headaches recently were a sign her tumor was growing, but since she wasn’t worsening in other ways, I was cautiously optimistic. I figured we were dealing with her latest effort to get off steroids. The doctor agreed.
But the next day she told me the radiologist who viewed her MRI noticed signs of thickening of the lining outside Susan’s brain (the dura), a condition called intracranial hypotension. It usually occurs if there’s a leakage of fluid from the spinal cord from a spinal tap or an accidental puncture, and could have happened when she recently had some electrodes removed from her lower back. If so, perhaps the leak was a small one since she didn’t have the terrible pain that comes with rising to sit or stand. In any case, the condition usually resolves on its own. Susan has been feeling well lately, so we’re okay with not having a complete understanding of what happened.
We’re glad to have Susan well and free from tumor progression so we can concentrate on weaning off steroids again and hopefully her gaining strength and function. Her gains are small and incremental while memory and vision are still difficulties for her. Still, we’re aware that God is keeping us in his care as we seek him for healing, strength, and restoration. I’m reminded of God’s word that says, “My grace is sufficient for you, for my power is made perfect in weakness.” (2 Corinthians 12:9) We continue to trust him in the mystery.