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Saturday, December 22, 2012

Seizure swarm

We're in ER at UCLA trying to get a handle on a seizure episode that started last night. I first noticed an odd non-response from Susan when a neighbor greeted us at Costco. At the time I chalked it up to aphasia since getting words out can be hard for her. But she was obviously seizing later when she had her head wrenched way to the right with eyes pushing right and was unresponsive when Adam was talking to her. It lasted 30-60 secs, then passed.

I thought some rest might help but called the doctor at 2am after a few more occurred. I gave her an extra Keppra tablet for seizure control and we upped her dose for the morning. Dr Kong said we would chat again then. Susan's been on anti-seizure meds for 5 1/2 years without any episodes except after initial brain tumor diagnosis.

Last night she had one every 60-90 mins, so it was not restful. We slept late. After more Keppra and breakfast, the seizure intervals shortened to 15-20 mins. The doctor said we should go to ER for other meds to stop the process.

After 8 hours, an MRI, and other tests in ER, we're waiting for Susan to be admitted to the hospital. She's still had about 8 or 9 seizures while on the stronger Ativan. She's able to see and hear as they occur, but can't speak until they're gone. She's moderately disoriented and very tired.

The initial MRI report shows no swelling or fluid changes compared to October but evidently some tumor growth, which is no surprise right now. She'll be admitted upstairs hopefully soon. She's also scheduled for an EEG to study her brain waves.
The doctors want to get the seizures under control and arrive at a firm idea for the cause. For now, both of these elude us. Actually, so does the hospital room.

Some highlights of the day: Susan joking around with Austin right after a seizure ended; Susan joking around with me whenever she could; Susan and I hugging and saying "I love you" a lot; and me saying "I'm a writer" when the admissions clerk asked for my occupation. We thank God for his gift of life and continue to trust him in all things. We thank you for your prayers.

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