The past two weeks have been full of therapy visits for Susan and part-time office hours for me. She continues to have great results with rehab and is becoming more familiar with doing household routines without needing constant supervision.
Susan had another Trader Joe's trip and prepared a lasagna dinner last weekend with the help of several therapists. Not only was it a delicious meal, it was another activity to help her feel like a normal person again.
Susan's attitude and sense of initiative are outstanding. She's had two episodes this month of diminished vision as she's experiencing lower light, more blind spots and less clarity. Overall, Susan feels good about her situation but has been more discouraged about not seeing well, mostly since we don't understand what's caused these lapses. They're at odds with her general improvement. We continue to pray.
We'll be back at UCLA this week for another MRI and consultation with the neuro-oncologist prior to beginning the next 5-day round of chemo.
Our focus remains "living with a malignant brain tumor," not dying from it. I see it as a matter of perspective, and a vital distinction. Even though longevity statistics for glioblastoma multiforme are poor, such statistics have nothing to do with Susan while she's alive – and the weight of them may only bring us down. I'd rather us fill our thoughts with life, healing, restoration and wholeness, since live or die, that's where we're headed anyway. And it's much more pleasant.
Here's Susan's journal entry from Thu 1/24:
Home sick with the flu today. I did keep my manicure & pedicure appointment
with Lexie by my side, and we came out with lovely toes and fingers. But I
didn't have any therapists come. We'll see what tomorrow brings.
I love that last thought – always hopeful.
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