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Friday, February 29, 2008

More progress and independence

Wed 02/27/08
We went up to UCLA for another MRI and neuro-oncology visit with Dr. Nghiemphu. The scan shows swelling in Susan’s brain similar to last month and thankfully, no tumor growth.
Since we recently tapered her down from 15 to 10mg of prednisone (a steroid that counters swelling), the doctor is interested to see another scan in March after a solid month at 10mg. After being on powerful steroids for over eight months and experiencing the moon-face and weight gain that are common side effects, Susan’s body is on the threshold of producing its own steroids again at this dosage. I’m eager for her to be off the drug as long as she doesn’t need it.
The doctor and her staff have been continually pleased to see Susan’s symptoms improving with each visit couple by lack of tumor growth. So far, so good.


Fri 02/29/08
With today’s Rehab Without Walls conference call, Susan was discharged from therapy after meeting all of her functional goals for physical, occupational and speech. We are so thrilled she’s reached this level independence. She can be at home on her own, makes breakfast and lunch meals, keeps up with the laundry, and has begun light workouts at the gym. I was impressed with our rehab team, their care and professionalism, and how they translated normal household tasks into measurable objectives. After getting to know these ladies with such regular visits, Susan will miss them.

Our family held graveside and memorial services for my Grandma today. It was terrific family time and a too-brief reunion with relatives and long-time family friends. The services at Messiah Lutheran Church in Downey were moving and Spirit-filled, a fitting tribute to a one-of-a-kind lady. I learned many valuable things from her, including how to think young and stay plugged in to life while growing old. We celebrate her long life with us and her going home to be with the Lord. It’s so wonderful to lay a loved one in the grave and know that Jesus has conquered death to secure our heavenly reunion –we praised Him well for that. See the link at the left for a glimpse at the life of this remarkable woman.

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