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Friday, April 12, 2013

A transition

After a tough week for Susan dealing with more serious complications and me realizing her disease continues to progress, we recognize the time has come to suspend the intensity of hospital treatment and bring Susan home for palliative care under hospice.

I’ve talked with our kids and family, and I met this afternoon with Susan’s neuro-oncologist and our specialist social worker. We had her brought back to UCLA this week so we might know whether she may recover to the point she was even two weeks ago when she was last discharged from here. Her level of seizure activity now seems to show she’s reached a limit she’s unlikely to overcome.

Our goal now is to make her as comfortable as possible, have her home with family, and neither hasten nor delay the process. There’s always the prospect that a person on hospice care can rally back and resume treatment, so we’ll watch for whether Susan does that. At this point in her journey, she’ll show us what she’s ready to do; and we’ll cooperate.

The idea of making such a transition has been hard for me since we’ve been together so long and fighting together so long for her recovery. It’s been a sad week. Crying comes easily and sometimes unexpectedly. The thought of being without Susan breaks my heart; but the thought of her being in heaven with the Lord revives my spirit. I pray for God’s continued wisdom for us this week, for his continued peace to attend Susan, and for him to be exalted in all things.

Meanwhile, we give thanks to God that our son Austin and another driver were only slightly injured in a head-on collision last night that totaled both cars. He was on his way home from church so we could talk as a family about Mom going on hospice. We’re grateful for well-made cars and what I imagine were mighty angel arms keeping each of them protected in their seats. When this swarm of stuff is over, that will be okay too.

Lexie, Austin and Adam are some of the finest people I know. As they go through one of the hardest things a person can face, they’re displaying strength, courage and maturity. Still, it’s one of the hardest things a person can face. We all appreciate your prayers.

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