Okay at home

Susan has been home from ICU nearly a week and is doing okay. She’s had phases this week ranging from bright and energetic to sleepy and less responsive, with periods of severe headache. Although she’s had a slight decline the past couple of days, her overall improvement from seizure activity last week has been a relief.

The level of activity at home is most unusual for us with nurses, caregiver, social worker and chaplain from hospice along with lots of family and friends, including a couple of brothers who trekked separately from Colorado. So many enjoyable visits along with being Susan’s nurse and trying to meet project deadlines each day for work have been a challenge for me. It’s meant late nights working, hard-won rest when I hit the pillow, and a blur of a week.

It’s all a big adjustment for us, compounded by the uncertainty of Susan’s condition, but over it all rests a great and wonderful peace. Our home has become a sanctuary for our family, a place of visits, meals, laughing, prayer, and joy, where those who visit bring us blessing along with their good will, meals, and flowers. We have the knowledge of God’s presence with us that sometimes we feel, and always know. I’m conscious of the gift of time we’re enjoying, and thankful to God for keeping us.