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Saturday, July 21, 2007

Wrapping up a long hospitalization, going home

Thu 07/19/07
Susan's procedure today to implant the IVC filter was successful, done under local anesthesia followed by a 4-hour lay-flat recovery. She's tired and sore, and went to sleep early. Her memory and vision are still affected; but she seems to get better oriented each day. We'll know tomorrow whether she'll be released.

Fri 07/20/07
After a full day of reading greeting cards together, having occupational therapy, visiting with our new friend and Susan's roommate Katie, and waiting to be released, Susan was discharged from the hospital. I consulted with a doctor, nurse, therapist and social worker about caring for her at home – the main thing is 24 hour supervision for her safety and continued medications for anti-inflammation, anti-seizure, or pain when needed.
When we arrived at home, Susan had no recollection of our house – the layout, the rooms; and she didn't recognize our dog and cat. Since her sight is limited, it was hard to discern our pets since they're both about the same size. She also kept confusing their names.
With a change of clothes, we went to Susan's parents' house for a family party to celebrate Susan's birthday and her parent's 50th wedding anniversary. The entire family was there, including Brian & Nancy and family from CO, and Randy & Dorothy and family – 27 in all. It was a great reunion.
We left early when Susan became fatigued and more confused. At home she remarked at home how she knew we had lived in our house a long time and how strange it is that she has no knowledge of it.

Sat 07/21/07
Susan feels like she was just born and needs to rediscover everything. I encourage her not to force it, but I'm pleased she's motivated. She's saddened that she can't distinguish colors (only shades of gray) and feels like the world has lost its vividness. She can see my eyes now, but not with clarity or color.
Lexie helped her mom bathe and dress. When I helped Susan brush her teeth, she hated the taste of her usual cinnamon toothpaste. "Ack – is this what I like?" The brain is a complicated organ.
Aside from some low back pain, Susan had a restful day and enjoyed relaxing outside in our patio. She has an ever-grateful attitude and apologizes continually that (she thinks) she's being a burden. I always remind her of our wedding promises to love each other for better or worse, richer or poorer, in sickness and health, forsaking all others till death do us part. We're partners.

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