Disqus

Wednesday, June 4, 2008

Hard days and determination

These have been hard days for Susan. She’s struggling with various levels of exhaustion, disorientation, and ability to do basic tasks. I relate her present symptoms to last week’s chemotherapy and hope they won’t last. Our chemo care notebook from UCLA mentions a term called the “nadir,” the low point in a person’s blood count following chemotherapy when symptoms are at their worst. (It seems the term comes from astronomy and is the opposite of an object’s high point or zenith.) It’s hard to know what that point is for Susan at this time, whether we’ve seen the nadir or we’re still getting there. For now, it’s just hard. She went to bed the other night wondering if it was dinner time or bedtime. Yesterday she couldn’t remember whether our dog Daisy is a male or female. She got stuck several times doing tasks, wondering if she added detergent to the laundry load or staring at the butter, the jam, and a piece of toast, not sure what to do next. The scary thing is to realize she’s been standing there 10-15 minutes trying to figure it out. Last night she caught herself (fortunately) after mixing up the liquid hand soap and the toothpaste – reminiscent of last August. And she’s tired. She woke up from her nap yesterday and fell asleep again while folding laundry. It’s hard because she knows she’s not doing well and is frustrated that she can’t help it. Still, Susan’s try-try spirit inspires me. I’m thankful for the stability of her will.

Monday morning our friend Floyd DeBoer called to let us know his wife Joanne had passed away at 4:30am and is now with the Lord. Her battle with brain cancer intensified over a short period of time as the remedies of surgeries, radiation, and chemotherapy did not stop her tumor’s aggressive growth. We share her family’s grief over her death as well as relief that her struggle is finished and she is in heaven. Susan and I are so grateful to have been able to walk with Floyd and Joanne along our brain tumor journeys and see how the Lord accomplished a redemptive work of faith in them. It has been beautiful to see them deepen in their knowledge and trust in Jesus, who won our victory over sin, death, and hell. These brain tumor experiences are life-transforming for everyone; but the in past few months, God brought the DeBoers and us closer to Him and helped us all be better prepared for heaven.

2 comments:

Anonymous said...

Greetings from Minnesota! We arrived home this morning and were reunited with our older kidlets that needed to finish school before coming back out to visit Grandpa in California. We hope to visit with him in August again.

I am sure Joanne shared her stories or thoughts of being 'broken' and not being able to do much some days but those days were my favorite days with her. They were the days she shared some of her life stories with me, how she met Floyd, why she chose nursing, how she loved both her sisters differently but equally or her son's (my boyfriend)childhood memories. Joanne was a free spirit and I loved that about her. So although she thought she was broken...I thought she was perfect and I am thankful for the time I got to share with her.

Susan and Mike...stay strong, keep fighting but remember there will be those challenging days~ try to embrace them...take them slow and enjoy them.

Mike thanks so much for the beautiful job you did at Joanne's service.

Take Care and Gods Blessings to you,
Beth

Jenalee said...

Thank you for doing these updates!

My family & I are constantly praying for Susan and your family!

-Jenalee